Christopher Kempski

advocacy
Advocacy enables people with disabilities to achieve their rights. Disability Advocacy involves knowledge of social policy, connections to organizations, and links to resources.

The following links provide information on various aspects of Disability Advocacy:


Social Policy Social Activism and Disability
Social Policy Articles ADA (Amercians with Disabilities Act)
Governmentental Affairs Stigma
Health Care Policy SSA (Social Security Adminsistration)
Activism  

>> Back to HEALTH & WELLNESS TOPICS
SOCIAL POLICY
From Wikipedia, the free encyclopedia
http://en.wikipedia.org/wiki/Social_policy

Social policy relates to guidelines for the changing, maintenance or creation of living conditions that are conducive to human welfare. Thus social policy is that part of public policy that has to do with social issues.

Social policy aims to improve human welfare and to meet human needs for education, health, housing and social security. In an academic environment, social policy refers to the study of the welfare state and the range of responses to social need.

In United States politics, social policies are those which regulate and govern human behavior in areas such as sexuality and general morality. Social policies are in contrast to other, more traditional forms of political policy, such as foreign policy and economic policy. Modern-day social policies may deal with the following issues:

Social policy may be influenced by religion and the religious beliefs of politicians. Political conservatives as a whole generally favor a more traditionalist approach that favors individual initiative and private enterprise in social policy. Political liberals, on the other hand favor the guarantee of equal rights and entitlements to all people and tend to favor state regulation or insurance to support this. In Europe and Canada, social policy usually refers to policies affecting the social conditions under which people live. Important areas of social policy in these countries are:

A new social policy project on health is planned for 2007. The aim is to identify health reforms which will deliver efficiency and accountability to consumers, ensure their health needs are met, but keep government financing and control to a minimum. Proposed areas of research include:

Copyright The Centre for Independent Studies. Please contact The Centre for Independent Studies Limited (cis@cis.org.au) for permission to reprint material.

[ Back to Top ]




SOCIAL POLICY ARTICLES
Listing of Social Health Policy articles:

Hospital Performance Measures and Quality of Care
by Werner, R., Bradlow, E., Asch, D., March/April 2008

Voting by Older Adults with Cognitive Impairment
by Karlawish, J., February 2008

The Shape of Things to Come: Obesity, Aging, and Disability
by Alley, D., Chang, V., Doshi, J., January 2008

Predicting and Monitoring Antiretroviral Adherence

by Gross, R., November/December 2007

A Wake-Up Call: Quality of Care After Resident Duty Hour Reform
by Volpp, K,. Silber, J., September/October 2007

Beyond "Sicko" Thoughts on Health System Reform
by Aiken, L. Caplan, A. Grande, D. Pauly, M. Rosoff A., Summer 2007

Reducing Firearm Injury: Lessons from Brazil

by Macinko, J. Marinho de Souza, M., June 2007

Medical Migration to the U.S.: Trends and Impact
by Polsky, D. Sochalski, J. Aiken, L Cooper, R., April/May 2007

How Health Affects Small Business in South Africa
by Chao, L. Pauly, M., March 2007

Time Under: Hospital and Patient Characteristics Affecting Anesthesia Duration
by Silber, J., February 2007

Flu-Related Hospitalizations in Children

by Keren, R. Coffine, S. Zaoutis, T., December 2006/January 2007

Lower Nicotine Cigarettes May Not Lower Harm
by Lerman, C. Strasser, A. Cappella, J., October/November 2006

Genetic Counseling and Testing for Breast Cancer Risk in African Americans
by Hughes Halbert, S., September 2006

Reacting to Antibiotic Allergies
by Apter, A. Strom, B., Summer 2006

Helping Smokers Quit Through Pharmacogenetics

by Lerman, C., May/June 2006

Preparing for the Next Natural Disaster: Learning from Katrina
by Kunreuther, H. March, 2006/April 2006

Antibiotics, Acne, and Upper Respiratory Tract Infections
by Margolis, D., February 2006

Understanding and Improving Hospice Enrollment
by Casarett, D., December 2005/January 2006

The Effect of Firearm Deaths on Life Expectancy and Insurance Premiums in the United States
by Lemaire, J., October/November 2005

No Time to Spare: Improving Access to Trauma Care
by Branas, C., September 2005

How Primary Care Practice Affects Medicaid Patients' Use of Emergency Services
by Lowe, R. Summer 2005

Genetics, Disparities and Prostate Cancer
by Rebbeck, T. May/June 2005

Child Neurology: Workforce and Practice Characteristics

by Polsky, D., April 2005

Computerized Physician Order Entry Systems: The Right Prescription?

by R. Koppel, J.P. Metlay, A. Cohen, B. Abaluck, A.R. Localio, S.E. Kimmel, B.L. Strom., March 05

Complementary and Alternative Medicine: Personal Preference or Low Cost Option
by Jose A. Pagan, PhD and Mark V. Pauly, PhD, February 2005

Racial Disparities in Cardiac Care: Geography Matters
by Groeneveld, P., Dec. 04/Jan 05

Public Spending on Elders and Children: The Gap is Growing
by Pati, S. Keren, R. Alessandri, E. and Schwarz, D.

Trauma Center-Community Partnerships to Address Firearm Injury: It Can Be Done
by Richmond, T. Branas, and C. Schwab, W., October 04

Transitional Care for Older Adults: A Cost Effective Model

by Naylor, M., April/May 04

Professional and Public Attitudes Toward Incentives for Organ Donation
by Jasper, J. and Asch, D., March 04

The New Medicare Drug Benefit: Much Ado About Little
by Pauly, M., January/February 04

Self-Management Education of Children with Asthma: A Meta-Analysis
by Guevara, J., November/December 03

Hospital Nurse Staffing, Education and Patient Mortality
by Aiken, L. Clarke, S. Silber, J., Sloane, D. 9(2), October 03

The Ineffectiveness of Retrospective Drug Utilization Review
by Hennessy, S. Strom, B. 9(1), September 03

How Physicians React to Cost-Effectiveness Information
by Asch, D. Hershey, J. Ubel, P. 8(9), Summer 03

Guns in the Home: Risky Business
by Wiebe, D. 8(8), May 03

Market Reform in New Jersey and Quality of Care: A Cautionary Tale
by Volpp, K. Williams, S. and Pauly, M. 8(7), April 03

Gatekeeping and Children's Health Care Costs
by Pati, S. 8(6), March 03

"False Alarm" Mammography Results—How Do Women React?
by Kahn, B. and Luce, M. 8(5), February 03

Accomodating Medical School Faculty with Disabilities
by Steinberg, A. Iezzoni, L. Conill, A. Stineman, M. 8(4), December 02/January 03


[ Back to top ]




GOVERNMENTAL AFFAIRS
For more infomation: http://www.ncil.org/news/RestorationAct.html

ADA Restoration Act
Seventeen years ago, Congress passed the Americans with Disabilities Act (ADA) with overwhelming bipartisan support. However, in recent years, a number of Supreme Court decisions have significantly reduced the protections available to people with disabilities in employment settings.

Courts are quick to side with businesses and employers, deciding against people with disabilities who challenge employment discrimination 97% of the time, often before the person has even had a chance to show that the employer treated them unfairly.

Indeed, courts have created an absurd Catch-22 by allowing employers to say a person is too disabled to do the job but not disabled enough to be protected by the ADA. People with conditions like epilepsy, diabetes, HIV, cancer, hearing loss, and mental illness that manage their disabilities with medication, prosthetics, hearing aids, etc. or mitigating measures are viewed as too functional to have a disability and are denied the ADA's protection from employment discrimination.

People denied a job or fired because an employer mistakenly believes they cannot perform the job or because the employer does not want people with disabilities in the workplace are also denied the ADA's protection from employment discrimination.

NCIL has been working with a broad coalition of disability organizations who are helping Representative James Sensenbrenner (R-WI) draft legislation, the ADA Restoration Act of 2007, which would enable Americans with disabilities utilizing the ADA to focus on the discrimination that they have experienced rather than having to first prove that they fall within the scope of the ADA's protection.

With this bill, the ADA's clear and comprehensive national mandate for the elimination of discrimination on the basis of disability will be properly restored and the ADA can rightfully reclaim its place among our Nation's civil rights laws. Majority Leader Steny Hoyer (D-MD), who played a leading role in passage of the ADA in 1990, will be an original cosponsor—but we need more Representatives to sign onto the bill when it is introduced to show the bipartisan support and importance of this measure.

Your help is urgently needed to garner support and passage of the ADA Restoration Act of 2007. Once you have contacted your Representative, please feel free to contact Deb Cotter with NCIL policy staff at deb@ncil.org or (202) 207-0334 and let her know the response you received.

National Council on Independent Living

[ Back to top ]




HEALTH
Definition
Declared State objectives relating to the health, morals, and well being of the citizenry. In the interest of public policy, legislatures and courts seek to nullify any action, contract, or trust that goes counter to these objectives even if there is no statute that expressly declares it void.

Hospital Performance Measures and Quality of Care
by Werner, R., Bradlow, E., Asch, D., March/April 2008
http://www.upenn.edu/ldi/issuebrief13_5.pdf


The Shape of Things to Come: Obesity, Aging, and Disability
by Alley, D., Chang, V., Doshi, J., January 2008
http://www.upenn.edu/ldi/issuebrief13_3.pdf

Beyond "Sicko"—Thoughts on Health System Reform
by Aiken, L. Caplan, A. Grande, D. Pauly, M. Rosoff A., Summer 2007
http://www.upenn.edu/ldi/issuebrief12_71.pdf

No Time to Spare: Improving Access to Trauma Care
by Branas, C., September 2005
http://www.upenn.edu/ldi/issuebrief11_1.pdf

Transitional Care for Older Adults: A Cost Effective Model
by Naylor, M., April/May 04
http://www.upenn.edu/ldi/issuebrief9_6.pdf

Accomodating Medical School Faculty with Disabilities
by Steinberg, A. Iezzoni, L. Conill, A. Stineman, M. 8(4), December 02/January 03
http://www.upenn.edu/ldi/issuebrief8_4.pdf

[ Back to top ]




ACTIVISM
From Wikipedia, the free encyclopedia
Activism, in a general sense, can be described as intentional action to bring about social or political change. This action is in support of, or opposition to, one side of an often controversial argument.

The word "activism" is often used synonymously with protest or dissent, but activism can stem from any number of political orientations and take a wide range of forms, from writing letters to newspapers or politicians, political campaigning, economic activism (such as boycotts or preferentially patronizing preferred businesses), rallies, blogging and street marches, strikes, or even guerrilla tactics. In the more confrontational cases, an activist may be called a freedom fighter by some, and a terrorist by others, depending on whether the commentator supports the activist's ends.

In some cases, activism has nothing to do with protest or confrontation: for instance, some religious, feminist or vegetarian/vegan activists try to persuade people to change their behavior directly, rather than persuade governments to change laws. The cooperative movement seeks to build new institutions which conform to cooperative principles, and generally does not lobby or protest politically.

[ Back to top ]




SOCIAL ACTIVISM AND DISABILITY
The oppression of people with disabilities has its roots in ancient beliefs about the body, the soul, and perfection. In the United States, the effect of these ancient discourses is still evident in the lives of people with disabilities. Despite the 1990 civil rights law, the Americans with Disabilities Act, we remain some of the poorest of the poor. In many places, such simple things as getting a taxi ride, going out for dinner, or using the sidewalk are impossible tasks for a wheelchair user. What is worse, many non-disabled do not believe that we should expect to do such things independently. This situation leads to the (en)forced segregation of people with disabilities from the non-disabled, effectively barring us from many opportunities for personal and social advancement. Our hope lies in solidarity: our situation is not unlike that of many oppressed and exploited groups. Though our stories are historically and socially unique, we, like many people of color and working class people, are still denied education, above-sustenence-level employment, and self-advancement on the basis of ancient and unjust prejudices and greed. If we are to succeed in our struggle for liberation, we must band together, both with respect for our separate struggles and in recognition of our common goal: a just society.

Links
Crip-Stirring Culture
Red Disability Articles
Marxism 2000—Socialism and the Disabled
The Politics of the Disability Rights Movements, by Ravi Malhotra
Disability Rights Advocates
Disability History Museum
How Many Ways has "Disabled" Been Said? for the linguistically curious...
The Gimp Store T-shirts, bumper stickers, etc.
Halftheplanet.com

Recommended Reading
• Beyond Ramps: Disability at the End of the Social Contract By Marta Russel.
• No Pity: People With Disabilities Forging a New Civil Rights Movement By Joseph P. Shapiro.
• The Disability Rights Movement: From Charity to Confrontation By Doris Zames Fleischer and Frieda Zames.
• A History of Disability By Henri-Jacques Stiker.
• The New Disability History: American Perspectives Ed. by Paul K. Longmore and Laury Umansky.
• The Birth of the Clinic: An Archaeology of Medical Perception By Michel Foucault.
• Stigma: Notes on the Management of a Spoiled Identity By Erving Goffman.
• Wage-Labour and Capital and Value, Price, and Profit By Karl Marx.
• Profit over People By Noam Chomsky.

[ Back to top ]




ADA (Americans with Disabilities Act)
http://www.ada.gov/

Americans with Disabilities Act (ADA), legislation passed by the United States Congress in 1990 to prohibit discrimination against people with disabilities and to guarantee them equal access to employment, public services, public accommodations, and telecommunications. Unlike earlier laws that were much more limited in scope, the ADA forbids unequal treatment of people with disabilities in a broad variety of circumstances.

To obtain the protections provided by the ADA, a person must either have a physical or mental impairment that substantially limits one or more major life activities, have a record of such an impairment, or be regarded as having such an impairment. Major life activities include walking, speaking, breathing, seeing, hearing, learning, working, caring for oneself, and performing tasks that involve use of the hands. Several federal government agencies, namely the Equal Employment Opportunity Commission (EEOC), the Department of Justice (DOJ), the Department of Transportation (DOT), and the Federal Communications Commission (FCC), enforce different provisions of the ADA.

Provisions
The ADA is divided into sections called titles. The four major titles address the following four areas: employment, public services, public accommodations, and telecommunications. Each title prohibits certain types of discrimination or requires government and businesses to make their services accessible to people with disabilities.

Employment
Title I of the ADA prohibits private employers, state and local governments, employment agencies, and labor unions with 15 or more employees from discriminating against otherwise-qualified people with disabilities. (The ADA also applies to the legislative branch of the federal government, including Congress and legislative agencies; other branches of the federal government prohibit discrimination of people with disabilities through the Rehabilitation Act of 1973.) Employers must not discriminate in job application procedures; the hiring, advancement, or discharge of employees; employee compensation; job training; and any other terms, conditions, and privileges of employment. An otherwise-qualified individual with a disability is someone who meets the requirements for skill, experience, education, and other conditions needed for the position and who, with or without reasonable accommodation, can perform the essential functions of the job.

Reasonable accommodation in employment consists of a variety of modifications or adjustments. These include (1) modifying a job application procedure so that a qualified applicant with a disability can be considered for the position, (2) changing the work environment, or the way the work is customarily performed, to permit someone with a disability to fulfill the job's essential functions, and (3) enabling an employee with a disability to enjoy the same benefits of employment as employees without disabilities—for example, ensuring that the company parking garage accommodates employees who use wheelchairs. Employers must provide reasonable accommodations unless they would create an undue hardship—meaning providing the accommodations would impose significant difficulty or expense on the employer.

Public Services
Under Title II of the ADA, state and local governments must not exclude people with disabilities from government programs or activities nor deny the benefits of government programs, activities, and services to such people merely because of their disabilities. Title II applies to anything a public entity does, even activities that are carried out by private contractors. For example, a state government is obligated to ensure that a private hotel located in a state park complies with the requirements of Title II.

In general, public entities must provide their programs and services in the most integrated (inclusive) setting possible, unless separate or different measures are absolutely necessary to ensure equal opportunity for people with disabilities. To provide such an integrated setting, state and local governments are required to modify policies, practices, and procedures that deny equal access to individuals with disabilities, unless a fundamental alteration in the program would result. For example, a city-sponsored quilting class held on the second floor of a building with no elevator might have to move to the ground floor to accommodate a person who uses a wheelchair. This change would not fundamentally alter the class. On the other hand, modifying a requirement that applicants for a driver's license pass a vision test would be a fundamental alteration of the license program. A blind person who asserted that the vision test made the program inaccessible would be unlikely to prevail under the ADA.

When necessary to ensure effective communication with people with disabilities, public entities must furnish auxiliary aids and services, such as qualified sign language interpreters or materials in Braille (see Braille System). Title II also mandates the accessibility of public and private fixed-route transportation systems (boat, bus, or rail).

Public Accommodation
Title III of the ADA prohibits all places of public accommodation from discriminating against people with disabilities. A place of public accommodation is a private business that offers goods, services, or activities to the general public. Title III provides an exhaustive list of categories of public accommodations. These categories are: places of lodging, establishments serving food or drinks, places of exhibition or entertainment, places of public gathering, sales or rental establishments, service establishments, public transportation facilities, places of public display or collection, places of recreation or exercise, places of education, and social services establishments. Private membership clubs and religious entities (such as churches and religiously affiliated schools) are not subject to these ADA requirements.

Under Title III, places of public accommodation must provide auxiliary aids and services when necessary to ensure effective communication with people with disabilities. They must remove architectural barriers in existing facilities when it is readily achievable to do so: for example, by installing wheelchair ramps. Furthermore, these places must ensure that all modifications and all new buildings are readily accessible to and usable by people with disabilities. Businesses may not impose surcharges on people with disabilities to cover the cost of providing accessibility.

Telecommunications
Title IV of the ADA requires that all telephone companies provide telephone relay services (TRS). TRS enables people who use text telephones (often called TTYs or TDDs) because of limited speech or hearing to communicate by telephone with people who do not use text telephones. TRS operators translate text from a text telephone into speech and vice versa. The ADA mandates that communications by TRS must work as well as telecommunication services used by people without disabilities. TRS must be available 24 hours a day, seven days a week, without excessive delays and with no restrictions on the type, length, or number of calls placed by a consumer. The rates for relay calls can be no greater than rates for calls on ordinary telephones.

© 1993-2007 Microsoft Corporation. All Rights Reserved

[Back to top]



STIGMA
Stigma is still alive and well, and there is always room for another opinion on what can be done about it.

What is Stigma?
Copyright 2005 Sonia Devine

Stigma is the use of stereotypes and labels when describing someone, and it is often attached to people who suffer from mental health issues. We don't fully understand how the brain works yet, but one thing we DO know is that it is an organ. Yet our society doesn't readily accept brain disorders the way we accept other organ disorders. Why is this so?

Stigma is a harsh reality for people who have mental health problems, because it prevents them from enjoying a normal and productive life. So many people today feel uncomfortable about mental health issues, despite the fact that there is growing evidence that more and more people are developing these problems. In fact, many people are so uncomfortable with the stigma that they would rather suffer in silence than get help they need.

Here are a few of the most common misconceptions about mental health problems:


The media has only further fuelled our distorted beliefs about mental health issues. Frequently, characters on television and in the movies that have a mental illness are depicted as dangerous, unpredictable and violent.

What Are the Effects of Stigma?
If you became ill you would go to a doctor. Once you got better, you would expect to get on with life as usual. But it's not that easy for people who suffer from mental illness. Often, they can suffer from persistent rejections and exclusions by ill-informed members of the community. Some people have been denied loans, health insurance and jobs because of their history of mental health issues. Consequently, these people lose their self confidence and may develop further anxiety or depression, on top of the issues they are already facing.

I witnessed this first hand many years ago, when my brother was diagnosed with schizophrenia. The majority of his friends deserted him; they weren't able to comprehend or cope with his altered personality and erratic behaviour. Within months he went from being a popular, vivacious and outgoing young man to a shattered, isolated loner. Over the following months, I watched my brother sink deeper into debilitating depression, which ultimately became so unbearable that he took his own life.

All of us have times when we feel depressed, anxious or angry. We might even have a series of bad days, where we think that nothing will ever go right for us and the world is against us. For a mentally ill person, these feelings do not go away.

So the answer lies in education and understanding. If you know someone who seems very emotional, down or upset, then lead by example; show compassion and understanding, and encourage them to seek help. And if you're suffering silently yourself, take comfort in the fact that you're not alone and that there IS hope.

Sonia Devine is a qualified professional hypnotherapist and success coach with a caring and committed approach to healing, who lives in Melbourne, Australia. You can find more of her information on mental health, self image, love, relationships, phobias and much more on her website: http://www.manifest-your-success.com

[ Back to top ]



SSA
Social Security Administration (SSA), independent government agency that administers the largest social insurance programs in the United States. Originally created in 1935 as the Social Security Board, the SSA was a division of the U.S. Department of Health and Human Services from 1980 through 1995. The social security program is the nation's primary means of assuring a continuing income when family earnings stop or are reduced because of the retirement, death, or disability of any person who contributes to the support of the family. Under social security, employees, their employers, and self-employed people pay contributions that are pooled in special trust funds. When earnings stop or are reduced because a worker retires, dies, or becomes disabled, monthly cash benefits are paid to replace part of the earnings lost. In addition to Old-Age, Survivors' and Disability Insurance, the other program that is administered by SSA is Supplemental Security Income.

Social security contributions help pay the cost of health care for people aged 65 and older. A portion of the contributions finances Medicare hospital insurance (see Medicare and Medicaid). Voluntary medical insurance, also available under Medicare, is financed by monthly premiums paid by the people who sign up for this protection and by matching contributions by the federal government. Administration of the Medicare program has been transferred to the Health Care Financing Administration.

In 1994 almost 43 million men, women, and children were receiving monthly cash benefits at the rate of more than $26 billion each month. Nearly all the people in the nation aged 65 and over were eligible for hospital-insurance protection. About 95 percent of them also had protection under medical insurance.

"Social Security Administration," Microsoft® Encarta® Online Encyclopedia 2007 http://encarta.msn.com ©1997-2007 Microsoft Corporation. All Rights Reserved.
© 1993-2007 Microsoft Corporation. All Rights Reserved.
http://www.socialsecurity.gov/pubs/10029.html

Disability Benefits
Disability is something most people do not like to think about. But the chances that you will become disabled probably are greater than you realize. Studies show that a 20-year-old worker has a 3 in 10 chance of becoming disabled before reaching retirement age.

This booklet provides basic information on Social Security disability benefits and is not intended to answer all questions. For specific information about your situation, you should talk with a Social Security representative.

We pay disability benefits through two programs: the Social Security disability insurance program and the Supplemental Security Income (SSI) program. This booklet is about the Social Security disability program. For information about the SSI disability program for adults, see Supplemental Security Income (SSI) (Publication No. 05-11000). For information about disability programs for children, refer to Benefits For Children With Disabilities (Publication No. 05-10026). Our publications are available at www.socialsecurity.gov.

SSA Publication No. 05-10029, January 2006, ICN 456000

[ Back to top ]
resources
testimonials
contact me
wellness topics
advocacy
assistive technology
health science updates
upcoming events